We’re Lindsay and Parker Cluff and our O Warrior, Crew, was born in February 2021 with a giant omphalocele which contained his liver, gallbladder, intestines, and part of his stomach.

During our journey it was difficult to find information and resources, and the few that we did find, we clung to.

We noticed that we weren’t the only ones looking for more. People were asking for support and information about what to expect, and looking for places to donate that would make a difference. There wasn’t an omphalocele nonprofit and so there wasn’t an official place to go for those things.

We kept getting a strong feeling that we needed to start a 501(c)(3) omphalocele charity. We knew we could organize a community to better fundraise and educate. We rallied together several great O families and others passionate about helping and built O Warrior, the organization that we wish existed when we received Crew’s diagnosis.

We’re hopeful that we can help many O families on their journeys!

Meet the Board

  • A smiling man with short brown hair, a beard, and blue eyes, wearing a white and gray striped collared shirt, standing outdoors in front of a brick building.

    Parker Cluff, President

    Parker saw that #owarrior was a commonly used hashtag when parents were sharing about their omphalocele kiddos, so he first started the O Warrior journey with a blog for their son, Crew, at owarrior.cluff.me. He is a software engineer with his undergrad in Computer Science from the University of Utah and an MBA from Brigham Young University. Being outdoors with his family and skiing Utah’s mountains are top on his list of what makes him most happy.

  • A woman with long dark hair is smiling and touching her neck, wearing a white textured button-up shirt and dark pants, standing against a gray background.

    Emilija Saxe, Vice President

    There’s not much that Emilija loves more than reading, writing, and organizing. Emilija’s son, Shepherd, was born with a giant omphahlocele in 2021. While the initial diagnosis was scary, she found comfort in doing lots of research, journaling, and meeting other “MOOs” in her city - Nashville, TN. During the day, Emilija puts her organizational and research skills to use as a producer and talent manager.

  • A woman with long blonde hair smiling outdoors in a wooded area wearing a cream-colored sweater.

    Corin Dimitruk, Secretary

    At 12 weeks Corin (prior sonographer) found her son, Grangers omphalocele. Granger was her IVF miracle baby. Knowing all the facts behind this diagnosis she wanted to know others going through the same. She now stays home with her son and supports others going through the scary diagnosis. Corin is married and living outside of Charlotte, NC

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    Chasity Simon, Director of Marketing

    At 13 weeks pregnant during her first ultrasound, Chasity learned the word Omphalocele and was told not to Google it. With a professional background in Marketing, she needed to find out all she could. Her son Kayden was born on 02/20/2020 with a giant Omphalocele and complete Pentalogy of Cantrell. The greatest and hardest adventure of her life started that day, and she is passionate about providing hope for new #owarrior families. Chasity is a certified Dog Trainer and Behaviour Consultant, living in Edmonton, Alberta, Canada.

  • A woman with short blonde hair smiling, wearing a blue sleeveless top with a bow, in a room with a background of stacked books and a decorative wall.

    Lisa Clark, Director of Education

    Lisa is a banker by trade, and the proud grandmother to an O Warrior. She knows the diagnosis can be a scary and confusing time, but she found that we are not alone. Lisa wishes to help families that are navigating the Omphalocele diagnosis with accurate information and appropriate support. She splits her time between Cincinnati, OH and Nashville, TN, and most enjoys spending quality time with her family and curling up with a good book.

  • Smiling woman with long dark hair wearing a brown coat and a green sweater, outdoors near Christmas trees.

    Caitlin Borowick, Director

    In 2021, Caitlin first learned of the word “omphalocele” during her anatomy scan at 18 weeks pregnant. Caitlin and her husband spent the next 20 weeks of her pregnancy searching for any available information on omphaloceles and connecting with similarly situated families. Caitlin’s son, Landon, had his closure surgery at birth, with the majority of his struggles focused on feeding issues for the first year of his life. Caitlin is a corporate attorney, with an interest in helping other families navigate the omphalocele diagnosis with necessary information and resources. Caitlin lives with her family in North Kingstown, RI.

  • Christina Williams, Director

    At 11 weeks pregnant with her first child Christina was faced with the shocking and terrifying news of her son Elliott's omphalocele diagnosis, a moment that transformed her life and perspective. Her passion for helping others fuels her commitment to provide resources and emotional support during these challenging times. As a sales representative by trade, Christina thrives on building relationships and connecting with people, bringing her passion for helping others into every interaction. She resides in Western Massachusetts with her husband, Ryan, and their son, Elliott, and together, they embrace each day. Through her work, Christina aims to empower families, ensuring that no one feels alone on their path.