Join us June 5th at 2pm eastern! Our theme this month is “making it through the first year.” Our special guest is Amber Haubert. Amber is currently a stay-at-home mom to take care of her little warrior Remi. Remi was born at 35 weeks with a giant O containing all intestine and liver. She spent a total of 360 days in the hospital. Amber and Remi have been through it all- ECMO, CRRT, tracheostomy, PICC lines, feeding tube battles, a stent, repair surgery and after lots of battles in between, she finally made it home.
This support group is open to parents, omphalocele survivors, family members - anyone affected! Come and share your stories and bring your questions!
